Now that I am home, I guess I thought I would magically have recovered - wrong. It is pretty easy to sit around at the hospital and get better, but home has things that need to be done, stairs to climb, children who can't reach certain things, etc. The hospital staff asked me every shift, "How would you rate your pain level?" So, I now have a number in my mind and the stuff for home is NOT the same as the hospital meds. I will have a couple days with the boys at school, Dave working from home, to really adjust.

Rumor has it . . .

there is a surgical team on their way to remove my last drain and I will be headed home today! I may even be home before David gets home from school. The plan now is to follow-up with the surgeon and notify him if anything changes - worsening shortness of breath, etc. Right now, I feel pretty okay and ready to get back into the swing of things. I see my oncologist on Tuesday and we will figure out what the cancer plan is too.

Surgery Update

It is now Sunday evening and I am still in the hospital. The surgery went okay and an x-ray yesterday showed that the tubes are draining the fluid as hoped. The 3 large drains hanging off of me show that as well.

I now have a private room because I need so much equipment! I am managing the pain well with a pump and feel a little better each day. No talk of going home yet. Need to wait until the fluid has drained. So far, I have drained about 4 L of fluid! No wonder I had trouble breathing!

Surgery today

My surgery is scheduled for today at 11 a.m. I don't know how long the procedure takes but I will have Dave update as soon as he can. I had to talk with my boys before I left for school. I called and David talked about how he has his least favorite special today and I asked Dawson to tell me his Bible verse he learned last week. (I got fussed at because that was LAST week's verse.) "Be strong and courageous for the Lord your God is with you wherever you go."

Surgery on Wednesday

I met with the thoracic surgeon today. Apparently, there is also fluid around my left lung so that will also be drained. I will be admitted into the hospital on Tuesday evening and will receive the surgery on Wednesday. I will be in the hospital for 4-5 days depending on the fluid drainage. I will have 2 drains while I am in the hospital.

Needless to say, my head is spinning with all of the logistical details. With this new development, the hospital stay is longer than we expected. Please pray that the surgery goes smoothly, no complications, and for a quick and easy recovery. Please pray for my men at home, too.

How a day can change things

I had the 2-D echo done of my heart and really had trouble breathing during it. I was on my left side and had to really concentrate on every breath - even had to take a few breaks. It seems that the pericardial effusion is now affecting my heart's ability to pump at its full capacity, which is what is causing my problems. The cardiologist contacted my oncologist and a cardiothoracic surgeon to schedule me for pericardial window surgery. I meet with the surgeon on Monday and am expected to have the surgery some time next week. I was told that I should feel much better once the fluid is drained.

I haven't had a chance to speak directly with my oncologist but it seems that the cancer is not the cause of my discomfort. I need to speak with him to know the specific plan but I am assuming chemo will not be happening this week.

When I spoke with our families about this, they asked if I had good news and I told them it was more of a curveball. I am still trying to wrap my head around this one. The links to the information about pericardial effusion and the surgery are very informative, if you are interested in reading more about it.

Never a dull moment

Well, over the weekend, I started having some trouble getting comfortable at night. Certain positions made me feel like I couldn't catch my breath. Today, when I went to the oncologist for Herceptin, just keeping up with the nurse walking down the hall had me winded. So, I am back on the chemo, had an x-ray and also have an 2-D Echo of my heart scheduled for tomorrow. There is fluid around my heart and that may be the cause of the shortness of breath. I will soon have a CT scan also.

I cried today like I haven't done in a long time. All I wanted was to get through December with no chemo - to feel good and be able to attend my boys' Christmas happenings. I am thankful for the very short time I had off but it is never long enough.